MedStar Georgetown University Hospital (MGUH), in collaboration with Georgetown University Medical Center (GUMC), has launched the Huntington Disease Care, Education and Research Center. With support from the Griffin Foundation, the Huntington Disease Center is the first comprehensive, multidisciplinary center to focus on treatment, patient education and research of the disease in the Washington, D.C. area.
Caring for those with Huntington disease and their families takes a comprehensive and tailored approach. MedStar Georgetown and Georgetown University Medical Center have assembled a team of specialized neurologists, psychiatrists, social workers and other specialists as a part of the new Huntington Disease Center. Up until now, people with HD have been underserved in the Washington, D.C. area.
This Center changes that.
Huntington disease is devastating for the entire family emotionally, socially and economically. Delivering comprehensive care, or cura personalis — care of the whole person, is central to the mission of the new Center. The Huntington Disease Center devotes considerable focus on research to discover new approaches to both treat the symptoms and slow the progression of the disease.
Through the funding of Huntington Disease Center, the Griffin Foundation assisted in the creation of a model center for the care of Huntington disease patients that provides the clinical support, education and services desperately needed by families and caregivers in the Washington, D.C. area.
In addition to the MGUH location, the Huntington Care, Education and Research Center plans to establish two community-based clinics in Virginia and Maryland to improve access and reduce travel time and inconvenience faced by those with Huntington disease.